Senate Resolution 22 - Introduced

PAG LIN




                    SENATE RESOLUTION NO.    
                            BY  SCHNEIDER
  1  1 A Resolution recognizing March as Fibromuscular
  1  2    Dysplasia Awareness Month in Iowa.
  1  3    WHEREAS, fibromuscular dysplasia (FMD) is a disease
  1  4 that causes abnormal cell growth of the arterial wall
  1  5 and can lead to areas of narrowing, beading, aneurysms,
  1  6 and dissections of the arterial wall; and
  1  7    WHEREAS, until recently there has been very little
  1  8 progress in understanding this disease and there are no
  1  9 set protocols to treat the disease; and
  1 10    WHEREAS, FMD has always been considered and is still
  1 11 classified as a rare disease, with many researchers now
  1 12 believing that FMD is an underdiagnosed disease; and
  1 13    WHEREAS, some data suggests 4 to 5 percent of the
  1 14 population is affected by the disease; and
  1 15    WHEREAS, 90 percent of the patients affected by FMD
  1 16 are women, but men and children can also develop the
  1 17 disease; and
  1 18    WHEREAS, there are different classifications of FMD,
  1 19 with the two most common types being medial fibroplasia
  1 20 and intimal fibroplasia; and
  1 21    WHEREAS, unlike adults, children tend to be
  1 22 diagnosed with intimal fibroplasia, which can be more
  1 23 aggressive; and
  1 24    WHEREAS, individuals and families affected by FMD
  1 25 often experience problems such as a sense of isolation,
  1 26 difficulty in obtaining an accurate and timely
  1 27 diagnosis, and less than optimal treatment options; and
  1 28    WHEREAS, unlike many rare diseases that are
  2  1 relatively well known, FMD is not well known by the
  2  2 public or the medical community and patients and their
  2  3 families bear a large share of the burden for educating
  2  4 the public and their own physicians and raising funds
  2  5 for awareness and research; and
  2  6    WHEREAS, the Fibromuscular Dysplasia Society of
  2  7 America (FMDSA) was founded in March 2003, and has been
  2  8 active and successful with many programs including
  2  9 public and physician awareness, patient support, and
  2 10 engaging and working with researchers from around the
  2 11 world; and
  2 12    WHEREAS, FMDSA is funding the United States Registry
  2 13 for Fibromuscular Dysplasia; and
  2 14    WHEREAS, recent data has shown the inaccuracy of
  2 15 the belief that 75 percent of FMD cases affect renal
  2 16 arteries and more recent data has shown it is very
  2 17 common to have a five=year delay from the onset of
  2 18 symptoms to a diagnosis; and
  2 19    WHEREAS, greater awareness and research of the
  2 20 disease is still needed as FMD patients present with
  2 21 the same symptoms as much of the general population
  2 22 such as hypertension, headaches, dizziness, stroke,
  2 23 dissection of an artery, aneurysm, swooshing noise in
  2 24 the ear, and renal infarction, and children can present
  2 25 with basic symptoms such as high blood pressure,
  2 26 headaches, insomnia, fatigue, and abdominal pain; and
  2 27    WHEREAS, the misdiagnosis of FMD can lead to severe
  2 28 consequences and disability; and
  2 29    WHEREAS, FMDSA is organizing a global observance
  2 30 of fibromuscular dysplasia during the month of March
  3  1 each year when patients, medical professionals, and
  3  2 researchers shall join together to focus attention on
  3  3 fibromuscular dysplasia as a public health issue; NOW
  3  4 THEREFORE,
  3  5    BE IT RESOLVED BY THE SENATE, That the Senate
  3  6 recognizes the month of March as Fibromuscular
  3  7 Dysplasia Awareness Month and invites the citizens
  3  8 of Iowa to educate themselves and others with regard
  3  9 to the diagnosis, treatment, and support of persons
  3 10 affected by fibromuscular dysplasia.
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